Protests Against NBC's Autism Series
NBC has had an autism series this season, comprising of documentaries, biographies, and medical information for their viewers.
While pleasing and informing to some, the nature and perspective of the shows have disappointed and angered some members of the autistic community.
Many adults with autism and asperger's dislike the attitude that autism is a condition that requires a cure. They prefer to seek acceptance and wish to educate members of society that autism is not a disease, mental illness, or epidemic, but a neurological difference that can have benefits.
Adults with autism are asking for help with services, housing, employment issues, but not for the miracle cure that some parents think would be best for their newly diagnosed children.
Joe Mele, an autism rights activist who protested against the NAAR walk on Long Island in October, has protested again - this time against NBC's coverage of autism issues.
He has become well known for his protest against NAAR and their search for a cure for autism.
His protest has been described as a pivotal moment in the history of autism rights, and he has been compared to Rosa Parks for his peaceful protest, the first ever by a person on the autism spectrum against those seeking a cure.
Joe Mele has today protested at a live broadcast for NBC with signs stating his views. He has tremendous support from the huge online autistic community, some of whom are semi or non-verbal and use the many forums and chatrooms to express views and ideas.
Mr.Mele has also put his money where his mouth is and asks patrons of his open source software to donate to a group he is a member of. He supports the work of Aspies for Freedom http://www.apsiesforfreedom.com and has written of his NAAR protest on the website -
http://www.aspiesforfreedom.com/phpBB2/viewtopic.php?t=321
Many autistics are unhappy with the new charity launched by NBC called Autism Speaks. Considering he fact that many autistics are semi or non-verbal it seems an ill fitting name, and the drive towards research for a cure upsets many too.
There have also been protest phone calls to the NBC helpline, and criticisms written of the alarmist talk of an epidemic of autism. There has been increased diagnosis and awareness of autism spectrum conditions, previously many were labelled as retarded and given less help and services. This does not create an epidemic however, and a recent report from the Mayo clinic confirmed that there was no link with MMR, mercury, or reasons for the increase other than better dianostic techniques.
Most of all the adults on the autism spectrum seem to desire more education of autism matters that is not sensationalist and dramatic, but simply shows their neurological differences and allows others to accept them.
While pleasing and informing to some, the nature and perspective of the shows have disappointed and angered some members of the autistic community.
Many adults with autism and asperger's dislike the attitude that autism is a condition that requires a cure. They prefer to seek acceptance and wish to educate members of society that autism is not a disease, mental illness, or epidemic, but a neurological difference that can have benefits.
Adults with autism are asking for help with services, housing, employment issues, but not for the miracle cure that some parents think would be best for their newly diagnosed children.
Joe Mele, an autism rights activist who protested against the NAAR walk on Long Island in October, has protested again - this time against NBC's coverage of autism issues.
He has become well known for his protest against NAAR and their search for a cure for autism.
His protest has been described as a pivotal moment in the history of autism rights, and he has been compared to Rosa Parks for his peaceful protest, the first ever by a person on the autism spectrum against those seeking a cure.
Joe Mele has today protested at a live broadcast for NBC with signs stating his views. He has tremendous support from the huge online autistic community, some of whom are semi or non-verbal and use the many forums and chatrooms to express views and ideas.
Mr.Mele has also put his money where his mouth is and asks patrons of his open source software to donate to a group he is a member of. He supports the work of Aspies for Freedom http://www.apsiesforfreedom.com and has written of his NAAR protest on the website -
http://www.aspiesforfreedom.com/phpBB2/viewtopic.php?t=321
Many autistics are unhappy with the new charity launched by NBC called Autism Speaks. Considering he fact that many autistics are semi or non-verbal it seems an ill fitting name, and the drive towards research for a cure upsets many too.
There have also been protest phone calls to the NBC helpline, and criticisms written of the alarmist talk of an epidemic of autism. There has been increased diagnosis and awareness of autism spectrum conditions, previously many were labelled as retarded and given less help and services. This does not create an epidemic however, and a recent report from the Mayo clinic confirmed that there was no link with MMR, mercury, or reasons for the increase other than better dianostic techniques.
Most of all the adults on the autism spectrum seem to desire more education of autism matters that is not sensationalist and dramatic, but simply shows their neurological differences and allows others to accept them.

7 Comments:
At November 30, 2005 at 6:38 AM,
Treena said…
Hi AmyNelson, I've been trying to find out about parenting styles . I checked out out this site on parenting styles but it wasn't quite what I was looking for. And then I came across Protests Against NBC's Autism Series. Some interesting thoughts there! So I thought maybe you might have some suggestions? Well, either way I shall be back to read more. Keep up the great blog.
At December 1, 2005 at 5:45 PM,
Treena said…
Hey AmyNelson,
... a sparkle in my eyes ... thanks to Protests Against NBC's Autism Series!
May I make a remark? Keep posting your ideas and thoughts.
They provide some entertainment during my hunt for info on parenting advice .
Thanks again.
At December 4, 2005 at 4:20 PM,
Treena said…
Hi AmyNelson,
Hunting all over the web for information on step parenting for a long time and then ... I stumble across your blog!!!
Good to read a different slant on parenting!
I have enjoyed reading your post. Your words have also energized me to continue my interesting search on step parenting for some college coursework. Thanks.
Have a great day.
At December 4, 2005 at 5:17 PM,
Treena said…
Hi AmyNelson,
Your refreshing ideas on Protests Against NBC's Autism Series make me smile :-)
It has got me thinking, which will help me in my search for the lastest info on teen parenting .
Thanks!!
At January 24, 2006 at 5:26 AM,
Estee Klar-Wolfond said…
I had a conversation with a NAAR official yesterday who responded to my comments on genetic research by Dr. Joseph Buxbaum. In my blog, I asked what purpose is determining what gene "causes" autism if not to abort an autistic fetus? They wanted to clarify that the interviewer framed the question in such a way for that response and in fact, they state that there will likely be 5 genes associated with autism. Okay. I still want to debate the ethical issuses of this.
While they initiated the contact with me, as I was a former co-chair here in Toronti and have been asking that they alter their semantics ...they did listened. I said that their use of negative ways of talking about autism, (the "D" words), their marketing push to "Cure" autism as a means to obtain more funding or callign autism an Epidemic, does a disservice to my son -- those words effect thinking and public policy. Why are the school doors closing? They are closing because organizations like NAAR are proliferating alarming semantics that unknowing individuals fear. Instead of raising positive awareness in order to build the bridges of understanding, they have chosen to treat autism like cancer -- the enemy. By marginalizing people like my son, he can not obtain the supports and rights to an integrated education. Or the education he might be entitled to will not support his intellectual needs. In short, NAAR would fare better if they made way for those with autism and asked:
"Where do you want to direct the research?"
There are enough adults with autism to tell it like it is and provide researchers with the information to guide the research process. Instead, NAAR relies on outsiders, and perhaps even distraught parents whom I still consider (I myself am a parent of a son labeled autistic) not entirely trustworty as to what may be required in terms of research.
I'm not sure if my words to this official will seep through to the others. If NAAR could open itself up for this, and for ethical debates on its own research it would become more socially responsible.
Estee
http://joyofautism.blogspot.com
At January 24, 2006 at 5:28 AM,
Estee Klar-Wolfond said…
Ugh. Sorry for disjointed spelling and grammar..breakfast time is occuring here on the range.
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